I lost my Mariel to Interstitial Lung Disease caused by Undifferentiated Connective Tissue Disease. Barely six weeks after we checked with a dermatologist to complain about some ordinary rashes and fever. ( We were even discharged earlier at another hospital for what they thought was merely a viral infection, after ruling out Dengue ).
C3 ANA test, Lupus panel, Malaria check, TB check, Typhoid check, X-rays, Punch biopsy, Hi-res CT scan all proved negative initially. Until one day, someone mentioned interstitial blah blah. Medrol, Plaquinil, Azythromycin, Pulse therapy, Rituximab, Deep Vein 2-D echo, ICU,Ventilator later didn’t seem to help. I know the doctors did the best they could, but is there really something more I could have done for Mariel? I was with Mariel 24/7 in the last 10 days at the hospital. I suffered too with every dip of the Oximeter, that painful alarm, the Spirometer torture machine and Mariel’s every brave attempt to fight off the disease. She kept strong faith in God through it all until He took her on Sept. 20, 2007. The only reason perhaps I could not bring myself to “hate” God for what happened to her was the fact that she suffered more than my whining self and never wavered. Thus, Mariel is my angel for saving my soul.
Undifferentiated Connective Tissue disease is a cruel, strange, kilometric, treacherous, despicable, double- barreled snob of a disease. I will fight it now for Mariel through my own dying breath.